I plan to up date this as best I can to fill in the gaps of my history. So, if you are a freind please stop by frm time to time to she what changes have been made.
I am new at all of the changes my body has gone through since September Last year (2008). I was diagnosed in 2005. And from everything I have read sofar I have had mild symptoms all of my life. When younger I could not run fast or far -- I made it through NAvy basic training by the skin of my teeth. And broke my legs Trying to complete the five mile run. I was 16 then.
From that point til about 1990 I was pretty much normal -(Whatever that means) 
I began having symptoms again and went through a battery of misdiagnosis. Until I was refered to a neurologists and had an EMG in 2005. Which pretty much confirmed I have type 2 CMT. From that point I went down hill pretty quick. The bones of my right foot are completely shattered. The left is close behind as I try at times to bear my balance upon it. Of the surgeons I have consulted one said it was inoperble. Another wanted to amputate it. I now have a third that will try to do the impossible. He said we can rebuild it maybe and in January we shall try. Today, I am in a wheel chair except in my very small apartment where a walk with a walker but not for more than a few feet (fatigue hits me real hard), I eat with adaptive tools. I have no feeling in any of my extremeties and I have severe muscular atrophy in all of my limbs. Even if and when the surgery is successful the only thin I will gain is the ability to wear shose that are somewhat normal. For now I have a Solid Plistic C.R.O.W. Walker on the right and a custom molded frankenstien boot on the left.
Through it all I have learned to be more pateint about things, learned to be more forgiving and acepting of others for who they are. I know who I am and whose I am. When one may ask, "how I am doing", I say one of two things, "My heart is still beating" or "I am looking at grass blades and not grass roots." 
And one fine day in the by and by when I am gone from this world I can truly say --- I am free at last, free at last --- thank God almighty, I am free at last.
How long have you been affiliated with the MDA community?
I have been Affiliated with MDA since February of 2009. I was diagnosed with CMT about 4 years ago. I had misdiagosed systems since about 1990.
What disease most interests you?
I am interested in CMT. As it related to my overall prognosis. I also would like to become a comunity facilitator (educator).
What are you most looking to gain from participation in MDA's online community, MyMDA?
There are a few things I am interested in belonging to this site. the primary I would suppose is copping with my ever changing, ever decreasing abilities. Next to that is How I can get help with the equipment I need. This is my current quest in the search for an accessible van.
What are you most interested in offering other members of MDA's online community?
I can help with local resources as I discover them. I live in Cleveland, OH. I would also be interested in becoming a facilitator (educator) to the community at large.
Are you registered with MDA?
I am registered with MDA since February of this year (2009).
What aspects of MDA's programs have you most benefitted from?
The sharing so far. I am not alone. I have been reading the variety of posts and comments ... I am deeply moved.(09/11/09)
What personal accomplishment/achievement are you the proudest of?
I have learned to live in the now. However I am a very accomplished Architectural designer. Have traveled the world 11 times. And, I can truely say that Johnny Cash's Song "I've been everywhere" can be my theme song.
Occupation:
Architectural Designer (Disabled) (Unemployed)
Company:
In the past self-employed
College:
Cuyahoga Community College, Parma, OH
High school:
Euclid Sr. High, Euclid, OH
Yahoo! username:
wesley.warren46@rocketmail.com
Interests and hobbies:
I paint abstract. and I am currently building an HO Scale model Railroad -- Modeling a mid 1940's oil town.
I would like to meet:
I met Jerry Lewis Many years ago -- I was not disabled at the time. I would like to meet him again.
Best attribute:
Great Smile (So I am told)
Worst attribute:
I have no tolerance for injustice or a lack of common sense.
Favorite bands and musicians:
DC Talk, Kirk Franklin, Tobey Mac and Steven Curtis Chapman are among my favorite music artists.
Favorite movies:
Men of Honor, Finding Forester
Favorite TV shows:
CSI, Bones, Dark Justice (off air), Dark Blue, Raising the Bar
Favorite artists:
Claude Monet, Michelangelo di Lodovico Buonarroti Simoni (commonly known as Michelangelo)
Status:
Married
Religion:
Christian
Education:
Some college
